Day 32 of 32 – Dublin to Dublin

This will be the final time I will lace up my running shoes on this 10 year journey across America 3X and Ireland 1X. It finally hit me.

A few miles and few hours remain as Run For Rare reaches it’s inevitable conclusion. And what a journey it has been.

From the moment I sat down on the couch at Joe and Kathy Allio’s house in October 2010 to St. Patrick’s Day March 2020, I have fulfilled my goal of sharing the story of Catie and Annie Allio with the world.

City – County – State – National – International

All 5 complete now.

4 years, 8 months, and 14 days ago was the last finish in San Diego on July 4th, 2015.

I have not worn these items since. I brought with me to Ireland.

1.) The black and white beaded necklace is one of the last made by Catie Allio before she lost her Batten Disease battle in 2012.

2.) The Green “lucky” beads are gifted to me from Annie Allio, Catie’s younger sister also battling Batten Disease.

3.) The infamous purple shoelace from 2011, 2013, and 2015 well fastened to my right shoe. Catie’s favorite color was Purple.

4.) And the BEE – representing the brave battle of an Ireland family who faced the same challenge of Batten Disease in Ireland. A wild guess who that family is? ….Tony and Mary Heffernan – The founders of BUMBLEance Children’s National Ambulance Service. Parents to Saoirse and Liam who also lost their battle with Batten Disease.

The 4 total Runs are dedicated to Catie and Annie Allio and the Batten Disease and Rare Disease Communities.

But, today is for the Heffernan family. In honor and memory of Saoirse and Liam. As I pick up the Ireland Flag one last time as a citizen of this great country, I know the luck of Irish and legacy of these brave children will be with me.

Please visit

#Run4Rare #BeeForBattens #Ireland