I am excited and pleased to announce Run for Rare’s new partner in the campaign for Rare Diseases. Introducing Global Genes – Allies in Rare Disease.

Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates and clinical partners. Their mission is to eliminate the challenges of rare disease.

I look forward to the opportunities and am thankful for the continued support of such an extraordinary organization.