Day 38- 

Has been a pretty rough last week, getting back on track. Good progress, good spirits. 

Trekking along through TN toward Nashville slowly but surely. Just got off the phone with Florida Congressman Bilirakis’ office in DC, and the EveryLife  Foundation for Rare Diseases in CA. 

Following up on the Congressman’s OPEN Act. 

“Orphan Product Extensions Now”. Great for the country and RARE community. 

-Double the number of Rare Disease treatments available. 

-Reduce off-label drug usage, ensuring treatments are safe, effective and affordable.

-Encourage biotech innovation, investment in research and new jobs.