Day 15 – Letterkenny to Downings (Na Dúnaibh)

19 Miles

International Rare Diseases Day

1/2 sunshine, 1/2 snowstorm, I had runaway sheep, rolling hills, the road less traveled, a gorgeous view, a snowstorm on a mountain top, and I officially ran across Ireland 1X (Cobh to Downings).

15 days down, 17 to go.

296 miles down, 304 to go.

I can’t describe the cold in my bones the final 6 miles due to the wind chill. Was only 40 degrees, but felt like 30 according to weather apps and being a human in the elements. I am a professional athlete and transcontinental runner, but this cold and snow impacted me going into the final 2 miles coming down from a mountain top. I reached the hotel with a shiver and soaked. All good now. A hot shower and meal and tea by a fireplace.

The 1st Leg of #Run4Rare Ireland complete! #Downings #Ireland

Day 15 – Letterkenny to Downings (Na Dúnaibh)

19 Miles

My least dramatic “finish”. No police escorts. No crowds. No pomp. No circumstance. Not needed! Fresh Atlantic air and peace and quiet (and wind). Just me and the beach. And a guy walking his dog who I asked to video. An obligatory and proper celebration. Run for Rare Ireland is not over yet, but I still officially crossed South to North / Cobh to Downings. 15 days, 296 miles. For #Ireland #Run4Rare

*International Rare Disease Awareness Day 2020*

Day 15 – Letterkenny to Downings (Na Dúnaibh)

19 Miles

Day 15 / A LIVE and IN-PERSON dedication to twins Zack and Luke battling Angelman Syndrome. A rare disease and even rarer with twins!

“Angelman Syndrome is a genetic disorder of chromosome 15 characterised by severe intellectual disability, lack of speech, sleep disturbance, and yet, usually a happy demeanour. Affecting 1 in every 20,000-25,000 people and based on our population there are currently approximately 350 people living with AS in Ireland.”

For more info:

http://www.angelman.ie

There are an estimated 7,000 rare diseases identified worldwide. In addition to 30 Million Americans…..Approximately 300,000 people in Ireland suffer from a rare disease. Up to 70% of people suffering from rare diseases in Ireland are children, of whom 30% will not reach their 5th birthday.

#Run4Rare #RareDiseases #Ireland #AngelmanSyndrome

Note: In one hour with an 8 hour time difference, I do a live video chat with over 200 at a Rare conference from San Diego. A global effort!

A special thank you to Beach Hotel Downings and owner Charlie for a complimentary night and meals, and for giving me a tour of the coastline tonight for some scenic camera shots. Hospitality at its finest.

Also, by chance, the Deputy Mayor of Limerick – Adam Teskey – was here. A great chat with an Ireland elected official and the staff of Beach Hotel.

They are very supportive of BUMBLEance Children’s National Ambulance Service and sharing the cause.

Text STAR to 50300 to donate €2 Euro to help me and Bumbleance help sick children across Ireland.

#Run4Rare