Day 10 is dedicated to two 7 year old identical twins with a very rare disease called Pitt Hopkins. In fact, Seth and Carter Patten from Jacksonville, FL are the only known case in the USA and second worldwide of Pitt Hopkins in identical twins. Globally, there are only 500 cases known. Yes, three digits 5-0-0, not a typo. RARE of the rare. 500 cases out of almost 8 Billion People on Planet Earth. Every Life Matters. To learn more and help out the Pitt Hopkins cause, please visit http://pitthopkins.org
Seth and Carter Patten (and mom Tiffany), today is for you on the 2015 Run for Rare.