February 28th, 2015
World Rare Disease Day
New York City, NY
At the Statue of Liberty
July 4th, 2015
San Diego, CA
Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease to bring awareness and rally support for the global rare disease community.
With over 7000 Rare Diseases known, it is important to recognize the social and economic impact of this critical health care issue present in today’s world.
Two Runs Completed
It all began in 2011 when Noah completed his first transcontinental Run across the United States of America. In 2013, Noah ran Coast to Coast again, solo, carrying with him the American Flag.
Noah has reached more than 7 million people over the course of his first two Runs. Primarily handling social media and campaign efforts from his road office (the jogging stroller), Noah has made many people think about Rare Diseases who may have otherwise not been exposed to them.
Run Coast 2 Coast was a 3,100 mile Run across America to raise further awareness for Batten Disease. This second time, Noah ran solo and unsupported while also carrying the American Flag. On July 27th, 2013, the run started at Ocean Beach in Half Moon Bay, CA. On November 10th, 2013, Noah completed the 2013 Run Coast 2 Coast at Pleasure Bay in Boston, MA. Noah again met with dozens of families and children affected by Batten Disease throughout the 108 day Coast to Coast journey while completing numerous media interviews. What started out as another transcontinental Run for Batten Disease soon became a story about the kindness and generosity of the American people. Along his journey, Noah also encountered numerous individuals impacted by other Rare Diseases. Noah became just the 28th person to ever cross the continental United States of America on foot TWICE.
Run for Research was a 2,500 mile Run across America to Raise Awareness for Batten Disease. On February 28, 2011, the Run started at Ocean Beach in San Diego, CA on World Rare Disease Day. On July 9th, Noah completed the 2011 Run for Research at Atlantic Beach in Jacksonville, FL. Noah met with dozens of families and children affected by Batten Disease throughout his 132 day Coast to Coast journey while also completing numerous media interviews. Noah became just the 222nd person ever to cross the continental United States of America on foot.