March 2015

Day 5- Kyle Bryant

Day 5- Noah and R4R Director Ezio Lucido chatting with an inspirational champion of the human spirit- Kyle Bryant – a powerful voice for Friedreich’s Ataxia.  http://rideataxia.org 

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Day 5- Approaching Philadelphia

From a fellow USA crosser. “It’s not a sprint, not a marathon, or an ultra, its a CONTINENT”Am I nervous? At times, yes. Just trying to make it […]

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Day 4- Quick Note 

Day 4- Still going. I am about 45 miles down, 40 to go until Philadelphia area, pacing myself. s are always the toughest- my body realizes the trauma […]

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02/28/15- R4R Day 1- In Pictures and Video

AWESOME first day to the 2015 Run 4 Rare! 3 News Interviews, 1 Statue of Liberty, 1 Ellis Island, 1 beautiful NYC view, family, friends, many Batten […]

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February 2015

R4R Day 1- The Start: International Rare Disease Awareness Day…..dedicated to Mary Payton Vigil of Louisiana

Well, today is the day. For some, it is just a Saturday, and for others the first day off on their weekend after a long work week. […]

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02/27/15 One Day to Go- Luminous Pictures arrives

We have boots on the ground in New Jersey. Run for Rare Director/Producer Ezio Lucido and Luminous Pictures have arrived and are gearing up for Day 1 […]

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02/28/15 Public Sendoff Details

On Saturday 02/28, the public sendoff and first step of the 2015 Run for Rare will be at Liberty State Park near the Empty Sky Memorial at […]

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CA State Capitol/Run for Rare/Papa Roach

All packed up, still writing the blog about the Sunday sendoff. Passing into Nevada shortly. Brief recap of today.

Today, at the State Capitol, Papa Roach was honored […]

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Preliminary Dates for Cities on R4R Route, Press Release

Hello All…..

Thanks for the interest and support. Have been pretty busy gearing up to leave home and line up this event. Here is the initial Press Release […]

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R4R Kickoff- One Week Away

Exciting times on the mad dash to the start. Great support from the community and beyond as we gear up for the Run for Rare. Preparing my […]

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Washington D.C. – Rare Disease Week 2015

I will be in Washington D.C. to attend the opening night of Rare Disease week on Monday, February 23rd at the RDLA events- Rare Diseases Legislative Advocates- […]

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Global Genes- Allies in Rare Disease

I am excited and pleased to announce Run for Rare’s new partner in the campaign for Rare Diseases. Introducing Global Genes – Allies in Rare Disease.

Global Genes […]

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Resolution from Solano County Board of Supervisors

 

 

 

Would like to thank Vacaville City Councilman Ron Rowlett for setting up a Resolution presentation with the Solano County Board of Supervisors at the Solano County Government […]

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January 2015

Great Event with Local and State Leaders

Awesome night at a crab feed to support Veterans of Foreign Wars with our State and Local leaders. Briefing our leaders on the upcoming Run. Great community […]

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Invite for R4R Kickoff Event- February 15th

Anyone in the Northern CA/ Vacaville/ Sacramento areas……you are invited to the Official Kickoff for the 2015 Run for Rare on Sunday, February 15th from 1pm-4pm at […]

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Introducing the 2015 Run For Rare

The story is not over yet………

First came the initial 2011 Run for Research.

Next came the encore- The 2013 Run Coast 2 Coast.

Today, I introduce the finale- The […]

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