March 2015

Day 9- Face Everything and Rise

Day 9- “Let us go forth with fear and courage and rage to save the world.” – Grace Paley I am fired up. A few quotes to motivate y’all. […]

Read More

 1

Day 8- Updates, Getting into a Rythym 

Day 8- Special Note: First of all, thank you all for the kind words and support. I will soon start dedicating every day to a different RARE cause […]

Read More

 0

Day 8- Special Mention- Celia Betz 

 http://betzfamilycolumbus.blogspot.com/2013/10/when-whole-world-is-winner.html?m=0A 2013 Blog from Betz Family in Columbus 4 years ago today, on the initial 2011 Run for Research, I dedicated the very first day of running to […]

Read More

 0

Day 8- America 

Day 8- “Before you can inspire with emotion, you must be swamped with it yourself. Before you can move their tears, your own must flow. To convince […]

Read More

 0

Day 8- American Flag and What It Means to Me 

Day 8- A outstanding blog written about the American Flag I carry by my friend Janet Bizjak who is inspiring to me for her positive attitude and daily […]

Read More

 0

Day 7- Phone Call from CA State Assemblyman Jim Frazier 

I received a phone call today from State of California Assemblyman- The Honorable Jim Frazier. Mr. Frazier called to wish me luck on my Run for Rare […]

Read More

 0

Day 7- Met “Garrett the Grand”

Day 7- “Garrett the Grand” has entered the building. Had a great meeting with the Coyne family from the Philadelphia area. Glad the weather improved from yesterday […]

Read More

 0

Day 7- PHI 

Day 7- I am encouraged by the reaction once again of the general public as I trek toward Washington D.C. People honking, waving, cheering me on. A […]

Read More

 0

Day 6- Projected Miles

Day 6- Glad I projected a slower start for the Run for Rare to accommodate for Mother Nature. I will most likely cross the 100 mile mark […]

Read More

 3

Day 6- Snow Day OFF

Day 6- Snow Day Off in Philadelphia. Convo with “Garrett the Grand”‘s dad Joe Coyne and pics of the Preston and Steve Show. Thank you Preston and […]

Read More

 0

Day 5- Preston and Steve tomorrow 

Day 5- Tomorrow morning 3/5 at 745 AM, I will be live and in-studio on 93.3 WMMR FM Philadelphia Radio on the Preston and Steve Show  talking […]

Read More

 0

Day 5- Kyle Bryant

Day 5- Noah and R4R Director Ezio Lucido chatting with an inspirational champion of the human spirit- Kyle Bryant – a powerful voice for Friedreich’s Ataxia.  http://rideataxia.org 

Read More

 0

Day 5- Approaching Philadelphia

From a fellow USA crosser. “It’s not a sprint, not a marathon, or an ultra, its a CONTINENT”Am I nervous? At times, yes. Just trying to make it […]

Read More

 0

Day 4- Quick Note 

Day 4- Still going. I am about 45 miles down, 40 to go until Philadelphia area, pacing myself. s are always the toughest- my body realizes the trauma […]

Read More

 0

02/28/15- R4R Day 1- In Pictures and Video

AWESOME first day to the 2015 Run 4 Rare! 3 News Interviews, 1 Statue of Liberty, 1 Ellis Island, 1 beautiful NYC view, family, friends, many Batten […]

Read More

 1

February 2015

R4R Day 1- The Start: International Rare Disease Awareness Day…..dedicated to Mary Payton Vigil of Louisiana

Well, today is the day. For some, it is just a Saturday, and for others the first day off on their weekend after a long work week. […]

Read More

 4

02/27/15 One Day to Go- Luminous Pictures arrives

We have boots on the ground in New Jersey. Run for Rare Director/Producer Ezio Lucido and Luminous Pictures have arrived and are gearing up for Day 1 […]

Read More

 0

02/28/15 Public Sendoff Details

On Saturday 02/28, the public sendoff and first step of the 2015 Run for Rare will be at Liberty State Park near the Empty Sky Memorial at […]

Read More

 0

CA State Capitol/Run for Rare/Papa Roach

All packed up, still writing the blog about the Sunday sendoff. Passing into Nevada shortly. Brief recap of today.

Today, at the State Capitol, Papa Roach was honored […]

Read More

 0

Preliminary Dates for Cities on R4R Route, Press Release

Hello All…..

Thanks for the interest and support. Have been pretty busy gearing up to leave home and line up this event. Here is the initial Press Release […]

Read More

 1

R4R Kickoff- One Week Away

Exciting times on the mad dash to the start. Great support from the community and beyond as we gear up for the Run for Rare. Preparing my […]

Read More

 1

Washington D.C. – Rare Disease Week 2015

I will be in Washington D.C. to attend the opening night of Rare Disease week on Monday, February 23rd at the RDLA events- Rare Diseases Legislative Advocates- […]

Read More

 0

Global Genes- Allies in Rare Disease

I am excited and pleased to announce Run for Rare’s new partner in the campaign for Rare Diseases. Introducing Global Genes – Allies in Rare Disease.

Global Genes […]

Read More

 0

Resolution from Solano County Board of Supervisors

 

 

 

Would like to thank Vacaville City Councilman Ron Rowlett for setting up a Resolution presentation with the Solano County Board of Supervisors at the Solano County Government […]

Read More

 1

January 2015

Great Event with Local and State Leaders

Awesome night at a crab feed to support Veterans of Foreign Wars with our State and Local leaders. Briefing our leaders on the upcoming Run. Great community […]

Read More

 0