Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Vivian from Shelby NC wrote on March 3, 2015 at 11:42 pm:
For my 14 yr old son who was diagnosed with VATER /VACTERL when he was born. One of the strongest people I know.! So glad to call him my son!!!
Marlo Dean from Virginia Beach wrote on March 3, 2015 at 8:59 pm:
My dedication is to my son, Dante', who is a Warrior fighting Batten Disease. I fight with you, son, with everything I have and everything I am. The one thing that ugly disease can't take is the deep love and dedication Mommy has for you sweet. Keep fighting!!!
Ali Vise from Hot Springs wrote on March 3, 2015 at 8:11 pm:
To my sweet Princess Warrior Ali whom was diagnosed with Battens June 15, 2011, a day we will never forget. Although, Ali lived a short 7 years on earth, she accomplished more than many do in a lifetime with her strength & Brave battle against the batten monster! Ali has an Army of Angels at that continue to Honor Ali & her Legacy 7 fight that Batten monster.
Pat Rocco from Parsippany wrote on March 3, 2015 at 8:01 pm:
To my 13 year old daughter Bella diagnosed with GIST-(Gastro Intestinal Stromal Tumor) at age 9. She had a clear MRI today-prayers answered! To everyone battling GIST and to those who tirelessly search for a cure. Not so rare when it effects your family. Thank you Noah!
Ashley Duncan from Waterloo, IA wrote on March 3, 2015 at 7:02 pm:
To my sweet little 7 year old cousin Jaxton who was recently diagnosed with Batten Disease and his amazing parents. Jaxton amazes me everyday and has touched the lives of so many people. We will fight Battens together.

2015 Route Map