thinking of Noah each day and honored to know him. Remembering my little man Christopher who lost his battle on 1/23/04 from Batten Disease. Love never dies. May I learn each day to be as strong as Christopher was and to find the blessing in each day.
Hey noah i was the guy that stopped u at the light today in philly and asked u what was u doing it for for donations and gave u 5 bucks....hope everything is going well and appreciate everything u doing to raise awareness for the kids...good luck on your journey
For my son, Chad Dovel, who met Noah in Omaha, NE on his last run in Sept/2013, 5 months before he lost his battle to Batten's Disease on Feb. 9, 2014. He was a Brave Warrior who fought it courageously every day of his life and who will live on in our hearts forever. Run for Chad, Noah, and the thousands of others who are still fighting the war with rare disease! May God be with you every step of the way!
I have Idiopathic Hypersomnia. This dedication is for anyone who has been dx with IH. I hope your friends and family are patient and understanding to this disease that so little is know about. When friends or family turn their backs on you always remember it has nothing to do with you and everything to do with them. Honestly I believe those who turn their backs on IH are worse off then we could ever be even during our worst days/weeks/months/yrs.
Life is to short to not be with people who support you and lift you up.
For my Daughter Camila, because everyday she shows to us the happiness of life with all the difficulty there is in it, diagnosed with VACTER Association. We love U Cam.