Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Peggy DiCapua from Middlesex, Nj wrote on March 7, 2015 at 3:42 am:
thinking of Noah each day and honored to know him. Remembering my little man Christopher who lost his battle on 1/23/04 from Batten Disease. Love never dies. May I learn each day to be as strong as Christopher was and to find the blessing in each day.
alexsandro mercado from camden wrote on March 6, 2015 at 3:56 pm:
Hey noah i was the guy that stopped u at the light today in philly and asked u what was u doing it for for donations and gave u 5 bucks....hope everything is going well and appreciate everything u doing to raise awareness for the kids...good luck on your journey
Debbie Dovel from Hamburg, IA wrote on March 6, 2015 at 3:56 pm:
For my son, Chad Dovel, who met Noah in Omaha, NE on his last run in Sept/2013, 5 months before he lost his battle to Batten's Disease on Feb. 9, 2014. He was a Brave Warrior who fought it courageously every day of his life and who will live on in our hearts forever. Run for Chad, Noah, and the thousands of others who are still fighting the war with rare disease! May God be with you every step of the way!
Lisa Leubin Smith from New Castle wrote on March 5, 2015 at 6:05 am:
I have Idiopathic Hypersomnia. This dedication is for anyone who has been dx with IH. I hope your friends and family are patient and understanding to this disease that so little is know about. When friends or family turn their backs on you always remember it has nothing to do with you and everything to do with them. Honestly I believe those who turn their backs on IH are worse off then we could ever be even during our worst days/weeks/months/yrs. Life is to short to not be with people who support you and lift you up.
YolandaMena from New York wrote on March 4, 2015 at 4:55 am:
For my Daughter Camila, because everyday she shows to us the happiness of life with all the difficulty there is in it, diagnosed with VACTER Association. We love U Cam.

2015 Route Map