Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Charlee Nelson from West Jordan wrote on March 14, 2015 at 11:32 pm:
It's been a year today since our sweet Charlee went to Heaven and was set free from Late Infantile Batten Disease. She met Noah on his second run and even though she couldn't see him, he always seemed to make her smile. Her sweet smile and warm spirit is missed more and more each day. We love you Charlee!
Liza Regan from Newbury wrote on March 11, 2015 at 6:47 pm:
For my strong, little, Maddie, age 6, who was born with VACTERL Association - malformations of the vertebrae, anus, heart, trachea esophagus, kidneys and limbs. The severity of the condition varies in different children; what remains steadfast is their will to live a full and joyful life. Thank you, Noah, for helping to bring awareness for rare diseases.
Victoria from Boston wrote on March 11, 2015 at 2:58 am:
For my son Chase, diagnosed with FPIES. FPIES is food protein Induced Enterocolitis syndrome, a rare severe food allergy. There is no test for it, no cure. It primarily affects the GI tract and certain foods (even hypoallergenic ones like rice) can cause acute vomiting to the point of hypovelmic shock. Thank you for doing this run.
Kathryn from Texarkana, Arkansas wrote on March 9, 2015 at 11:57 pm:
My son Noah is 3 years old with a rare disease that affects the lungs, sinuses, and ears called primary ciliary diskinesa(PCD). He is one of the strongest kids I know even through all the breathing treatments, chest compression therapy, surgeries, and hospital stays he always smiles and thinks of others. Thank you so much for bringing attention to all the rare kids and the struggles they face most importantly how brave they are!
nancy groves from Nevada wrote on March 7, 2015 at 7:25 pm:
For my grandson Seth Dunford. Was diagnosed with batten January 11 2013. Lost his battle with batten January 14 2015. He wad the strongest little man I know.

2015 Route Map