Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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AngelSoko from Atlanta wrote on April 7, 2015 at 5:37 pm:
To all the BA children...we need a 'run for rare'. A liver disease that has no known cause. Awareness rocks
bobby spain from johnson city tennesse wrote on April 2, 2015 at 2:08 pm:
i met noah on the side of highway 11 w just outside of mt carmel tn. today.i talked with him long enough to be really impressed.
Shaun from Roanoke wrote on March 27, 2015 at 2:28 pm:
Charlie, Samantha, and Mike are three friends I have met over the years through my personal battle with sickle cell anemia. They also shared this fight, among many other illnesses between the four of us. Unfortunately, my three friends have lost this fight at very young ages, 12, 25, & 35 respectively. I miss y'all everyday and think about you all the time and now I ask that everyone who reads this take sometime to learn a little more about sickle cell anemia and trait today. This disease effects more people than originally thought. Typically sickle cell is thought of as a Black disease. Well this just isn't true. SCD, originated in Africa, but it is also prominent in the middle eastern and Indian communities. Also, here in the USA, because we are all integrating more and more into each other's ethnic groups SCD is also presenting itself in the White population as well.
Michelle wrote on March 20, 2015 at 6:23 pm:
For my 5 year old son Matty who is battling Late Infantile NCL, Battens. He brings sunshine into the lives of every single person he meets and he is fighting this insidious disease until there is a cure. Thank you Noah for shining some light on Battens and increasing the awareness of this and the many other rare diseases.
Lindsey Geiger from chesape wrote on March 16, 2015 at 5:39 am:
id like to make a dedication for my daughter Savannah who has Kat6a and for all of our kat6a friends (only about 15 diagnosed world wide) this is a newly discovered rare disease and therefore We don't know what to expect for our kids. We just live day to day doing the best we can. Savannah is 5 years old, she's non verbal, non mobile, she has severe developmental delay, was born with multiple birth defects including a cleft palet, multiple VSD's, malrotated intestine , hydronephrosis, microcephaly & more. You can find more about kat6a @ or search for us on Facebook, KAT6A Support Group

2015 Route Map