Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Leslie Kay from Dallas, Tx wrote on April 26, 2015 at 9:16 am:
Go, Noah, Go! God bless and be with you every step. Please remember folks like me with systemic sarcoidosis, thank you!!! Watching you all the way!!! Hope to be out in Dallas to cheer you on. From my heart to yours, thank you! April is national Sarcoidosis awareness month. Wear purple for sarcoid! Hugs! Take care of you! xxxx
Deputy Eddie Adamson from Forrest City, AR wrote on April 22, 2015 at 8:45 pm:
It was great to meet you on US70 this afternoon and get to visit with you. I am willing to bet this third run won't be your last! Stay safe and keep up all the good work Deputy Eddie Adamson St Francis Co Sheriff's Dept (ARK)
Candace from Fort Lauderdale wrote on April 15, 2015 at 9:57 am:
Noah, thank you for raising awareness. May 1st will be a year since I was diagnosed with Immune Thrombocytopenia. I lived 27 1/2 years as a healthy, happy person with no limits. I have had to redefine my entire life after becoming sick. I hope that your journey continues to inspire people to push for more support for the rare community. I was thrilled to see you met with Congressman Bilirakis in DC, he is a fantastic person! We are hoping the OPEN ACT is passed. Best wishes to you!
Paula Ruter from Mt. Pleasant, MI wrote on April 12, 2015 at 11:32 am:
My daughter, Anna, was born with a rare metabolic disorder called Maple Syrup Urine Disease. She has taught me so much over the last 17 years, most of all how to be strong and advocate for that which is important Thank you, Noah, for bringing awareness to rare diseases!
Melissa Mayorgas from Murrieta, CA wrote on April 7, 2015 at 9:20 pm:
Thank you on behalf of my family. Our son suffers from a very rare disease, Ullrich Congenital Muscular Dystrophy. Only a few hundred documented cases world wide. We look forward to following you and seeing you successfully complete your journey. Prayers for a healthy and injury free run.

2015 Route Map