Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Rachel Daniels from Oklahoma City, Oklahoma wrote on May 13, 2015 at 6:24 pm:
Noah- my beautiful 15 month old daughter suffers from the extremely rare Congenital Generalized Lipodystrophy (Agpat2). It was such an honor meeting you today at the Oklahoma State Capitol..your kindness and love that you showed to both me and my daughter, Alani will never be forgotten. May God Bless you forever and always with the desires of your heart..#teamlipodystrophy
Erik from Oklahoma City wrote on May 12, 2015 at 3:04 pm:
Noah - thanks for your work. My son has a rare disease, Rubinstein-Taybi Syndrome, and I did a 24-hour run to raise funds for an RTS-specific charity. Your goal of crossing the country is so much more amazing. It's my understanding that you're in Oklahoma City now (May 12). If so, please have your people get in touch with me - we'd love to cheer for you!
Pam Tobey from Charleston, AR wrote on May 4, 2015 at 6:34 pm:
Hi Noah, God bless you for what you are doing ! If I had known that you were in Ft. Smith, AR yesterday I would have come to meet you. My daughter, Autumn, battled Mucolipidosis III for 38 years. It is so very rare that she was the only known patient in AR. On Nov. 21, 2014, 3 days after her 38th birthday, she went home to heaven. She spent so many years in horrible horrible pain and many many surgeries to replace joints, fuse joints and replace bones with cadaver bone. So little attention is on rare disease. God speed !
Farrah Nipper from Muldrow, Oklahoma wrote on May 3, 2015 at 1:59 pm:
Hey, Noah! It was a pleasure meeting you today in Roland, Oklahoma. Thanks for everything you do. Your public voice is a gift from God.
Nancy Coyne from Gilbertsville, PA wrote on April 27, 2015 at 7:00 pm:
You are AWESOME Noah!! We met early in your journey but we continue to watch you travel daily. THANK YOU! We dedicate today to Garrett (the Grand). Today Garrett turned 5. He is a wonderful boy with NCL - infantile (Batten Disease). He meets challenges daily and overcomes them with strength just like Noah. So glad there are people and a runner out there giving Rare Disease a voice.

2015 Route Map