Reading this brought tears to my eyes. My 6 yrs old grandson was recently diagnosed with a rare metabolic disorder called ALD short for Adrenoleukodystrophy. 1 out 18,000 worldwide are diagnosed with it.
Thank you for spreading awareness. God bless you.
You are amazing! Such a long run! My son died from a rare disease (alveolar capillary dysplasia) in 2010, so rare disorders are dear to me. Thanks for what you are doing to raise awareness!
Thank you for this! My daughter has a 1 in a million disorder called AHC and we are so thankful for people like you raising awareness for rare diseases!
Thank you Noah for doing this. It's an amazing tribute to the Rare families. I dedicate this to my 2 year old son Korbin with Jarcho Levin Syndrome.
Noah, thank you for taking so much time out of your personal life away from your family, friends and employment to dedicate a run across the United States to patients with rare diseases. Thank you!
With Hope, Pam and the whole Fibromuscular dysplasia community!