Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Nalani A from Waipahu wrote on June 1, 2015 at 6:33 pm:
Reading this brought tears to my eyes. My 6 yrs old grandson was recently diagnosed with a rare metabolic disorder called ALD short for Adrenoleukodystrophy. 1 out 18,000 worldwide are diagnosed with it. Thank you for spreading awareness. God bless you.
Emily Eschweiler from Woodbury, MN wrote on June 1, 2015 at 6:05 pm:
You are amazing! Such a long run! My son died from a rare disease (alveolar capillary dysplasia) in 2010, so rare disorders are dear to me. Thanks for what you are doing to raise awareness!
Melissa from Clarksville, TN wrote on June 1, 2015 at 3:33 pm:
Thank you for this! My daughter has a 1 in a million disorder called AHC and we are so thankful for people like you raising awareness for rare diseases!
Samantha Fox from Bakersfield wrote on May 27, 2015 at 6:49 pm:
Thank you Noah for doing this. It's an amazing tribute to the Rare families. I dedicate this to my 2 year old son Korbin with Jarcho Levin Syndrome.
Pam from Grosse Ile wrote on May 27, 2015 at 6:19 pm:
Noah, thank you for taking so much time out of your personal life away from your family, friends and employment to dedicate a run across the United States to patients with rare diseases. Thank you! With Hope, Pam and the whole Fibromuscular dysplasia community!

2015 Route Map