Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Rae from phoenix wrote on June 20, 2015 at 4:26 pm:
Saw you today in arizona! Have a safe journey.. keep inspiring across the country!!!
Claudiu2580 from Romania wrote on June 19, 2015 at 10:42 am:
Monique from Dallas wrote on June 13, 2015 at 7:58 pm:
You are truly an inspiration and a hero in my eyes. My little man has Alagille Syndrome and it is because if people like you he is receiving the best treatment possible. Thank you for raising awareness. We will pray for you. Thank you again.
Nichole McCloskey from Mason City, Iowa wrote on June 4, 2015 at 3:37 pm:
This is amazing!!! You are doing a wonderful thing for everyone that has a rare disease! My 8 year old son has a rare genetic disease, Gaucher Disease. We are so very thankful for people like you creating awareness for rare diseases!! You are a very strong person!
Karen Carlo from Bowie, MD wrote on June 1, 2015 at 6:35 pm:
go Noah! My little guy has eosinophilic esophagitis, which is about to go under the threshold for rare. So awesome you are raising awareness of rare diseases!

2015 Route Map