Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.

Blog

Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 

Partnerships

Dedicate Today to your Loved One with Rare

Write a new entry for the Guestbook

 
 
 
 
 
 

Fields marked with * are required.
Your E-mail address won't be published.
For security reasons we save the IP address 54.224.43.96.
It's possible that your entry will only be visible in the guestbook after we reviewed it.
We reserve the right to edit, delete, or not publish entries.
Heidi mazeres from woodland wrote on March 3, 2015 at 4:48 pm:
to Sean Mazeres fight against Friedreichs ataxia an orphan disease for which there is no cure. He is an inspiration to many courageous and determined to face each day head on
Joseph Albaugh wrote on March 2, 2015 at 10:29 pm:
To my daughter Audreana Albaugh who was taken from me by battens disease on 10-19-2013 you are missed very much I love you .... And Alexandria 16 is still with me for the time she also has battens.
Noah from Coughlan wrote on March 2, 2015 at 8:15 pm:
I dedicate today to all of the families and children I have met who are battling Batten Disease. You are strong beyond measure, and an inspiration for me t keep going forward.

2015 Route Map