to Sean Mazeres fight against Friedreichs ataxia an orphan disease for which there is no cure. He is an inspiration to many courageous and determined to face each day head on
To my daughter Audreana Albaugh who was taken from me by battens disease on 10-19-2013 you are missed very much I love you .... And Alexandria 16 is still with me for the time she also has battens.
I dedicate today to all of the families and children I have met who are battling Batten Disease. You are strong beyond measure, and an inspiration for me t keep going forward.