Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Sherry from Centennial, CO wrote on March 3, 2015 at 6:40 pm:
For my son Aaron, 23 years old, who was diagnosed with VACTERL Association and for every person who was born with it, whether they died fighting their battle or are still fighting today.
Jaime Crawford from Lexington wrote on March 3, 2015 at 5:53 pm:
For my sweet Sophia Grace, who earned her wings in September 2014 at the age of two years. Forever my hero! You are loved and missed princess!
Jane Daye from Calais wrote on March 3, 2015 at 5:35 pm:
For my niece,Chelsey Jane Worster. She gained her wings on 3/21/2013 at the age of 17 after battling Juvenile Batten Disease. The bravest,strongest girl I know...we miss you and love you always. XO
Stephanie Kramer from Doylestown , PA wrote on March 3, 2015 at 4:57 pm:
My dedication is to Melissa Ross who is celebrating her 22nd birthday today!!Melissa has Batten Disease and is fighting strong! The strength both Melissa and her family have shown has been very inspiring to me. They embody what family is about!
Joan Ortland from Saddle Brook wrote on March 3, 2015 at 4:49 pm:
To our Angel Danny who suffered with this dreaded disease and lost his battle on January 20th, 2012 at the age of 12. He was our hero and touched the lives of everyone that came in contact with him. He will forever be in our hearts, our thoughts, and our prayers, and will never be forgotten. We luv you xoxoxoxoxo

2015 Route Map