Run For Rare

Run For Rare is an ongoing movement charged by the multiple transcontinental runs of Noah Coughlan, a man inspired by two childhood friends battling a Rare brain disease (Batten Disease) to bring awareness and rally support for the global rare disease community.

Noah Coughlan

Noah Coughlan, 33, was born and raised in Vacaville, CA.  He is a graduate of the Napa Valley Police Academy with a passion for public service. 

Noah has worked with Congressional Leaders in Washington D.C., Governors and State and Local Leaders to enact change and further progress. 

In 2011, Noah Coughlan became just the 222nd person to cross America on foot after running 2,500 miles from Ocean Beach in San Diego to Jacksonville, FL in 132 days on the 2011 Run for Research. 

In 2013, Coughlan ran again, becoming just the 28th person to Run across America TWICE after running 3,100 miles from Half Moon Bay, CA to Boston, MA in 108 days – on the 2013 Run Coast 2 Coast. 

In 2015, Coughlan completed a 3,000 mile solo trek from New York City to San Diego, CA totaling 127 days- on the 2015 Run for Rare, becoming the third person to run across America three times.

Where’s Noah?

Current location is identified by city and is updated every 24-48 hours.


Day 76- Dedicated to Carl Young, Tim and Paul Samaras

Day 62- The American People and Rare Diseases- Arkansas

Day 57- Little Rock- for Ofc. Jim Capoot #497 

Day 39- For Kayla- PCDH19 Epilepsy 

Day 38- For 10 year old Riley in TN 

Day 38- In TN, OPEN ACT follow up. 


Dedicate Today to your Loved One with Rare

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Sonny and Norah Faenzi from Vacacille wrote on July 29, 2015 at 3:28 pm:
Noah, Thank you for doing what you are doing!. My grandchildren, Sonny 9 yrs.old and Norah 4 years old have a very rare eye condition called ACHROMATOPSIA. They become blinded by light and are complete colored blind seeing in only varying shades of gray.There are no medical or surgical treatments for Achromatopsia. In the future, we hope that genetic research may provide new methods of treatment.
Christine from Desert Hills AZ wrote on July 7, 2015 at 7:17 pm:
Thank you for sharing YOU for all of US!! Ehlers Danlos...Marfans...Sticklers
Sarah from San Diego wrote on July 4, 2015 at 6:03 pm:
Saw you finishing up in San Diego today! Had no idea what was going on so I googled it and I think it's amazing what you're doing! God Bless!!
Carleen from San Diego wrote on July 4, 2015 at 1:59 pm:
An hour ago i saw Noah run on Balboa Over highway 805, had no idea what it was about and looked it up. Wow Noah what a great thing you are doing, pretty amazing! And how crazy to think this journey will end in another hour in ocean Beach, at least that is the plan I read. Great accomplishment for a great cause! Well done Noah, you are a remarkable man!!
Miriam F. from San Diego wrote on July 4, 2015 at 1:04 pm:
Just saw you in San Diego!!! Proud of what you're doing! God bless you, all those affected by rare diseases and God bless America!!! Happy fourth!

2015 Route Map